A programme to improve the management of children with cerebral palsy and to monitor their progress was introduced in two southern counties in Sweden in 1994. Since then it has been extended to the whole country, and has been taken up by Norway, Denmark and Iceland, and become well-known globally. Data on survival to late adolescence and on causes of death and associated factors have been reported (Lena Westbom and colleagues. Dev Med Child Neurol 2011;53:808–14; see also Commentary, ibid: 776). The study included 708 of 718 children with cerebral palsy who survived to …