Background Greater collaboration between agencies and the need to improve interagency
working is a key policy priority. The lack of co‐ordinated multi‐agency working in children's …

Research carried out over a number of years provides a consistent picture of the
experiences and needs of parents of disabled children. Recent studies, based on models of …

Background The involvement of children and young people in decisions regarding service
development is well supported in government policy and underpinned by the UN …

Objective: To investigate levels of psychological distress in parents of children with cancer
and relationships between distress and measures of illness variables, appraisal …

In a study of families of children with Down's syndrome, measures of parent, family and child
characteristics were obtained from mothers and fathers. Multivariable analyses investigated …

PURPOSE: To explore the experiences of chronically ill adolescents in communicating with
health professionals, including the identification of factors which hinder or facilitate their use …

Associations between descriptor variables of child characteristics, life events, parental
resources and coping strategies and outcome measures of psychological distress …

Service contacts, perceived helpfulness of services and needs for help were investigated in
a sample of 107 families of young children with severe physical disability. Many families …

In the present study, families' experiences of caring for a technology‐dependent child were
examined from a temporal perspective. This involved exploring the multiple …

The diagnosis and treatment of childhood cancer places considerable demands on family
life. Siblings have been shown to be at risk for development of emotional and behavioural …