Background Poor nutrition occurs frequently in people with cystic fibrosis and is associated
with other adverse outcomes. Oral calorie supplements are used to increase total daily …

There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources,
research should focus on questions which are most important to the CF community. We …

Abstract In a recent James Lind Alliance Priority Setting Partnership in cystic fibrosis (CF) the
top priority clinical research question was:“What are effective ways of simplifying the …

Background Staphylococcus aureus causes pulmonary infection in young children with
cystic fibrosis. Prophylactic antibiotics are prescribed hoping to prevent such infection and …

Background The palatability of flucloxacillin oral liquid is poor. Parents/carers use strategies
to aid the administration of poorly palatable medicines. Aim To assess views on the …

The availability of high-quality data from patient registries provides a robust starting point for
using Machine Learning (ML) techniques to enhance the care of the patient with cystic …

Life science research and development (R&D) companies are all too aware of the
importance of patient perspectives but also of the barriers to engaging directly with patients …

Aim Palatability of flucloxacillin is poor, yet is used long-term in the management of children
with cystic fibrosis (CF). Strategies to aid administration of unpalatable medicines have been …