The quality of life of home-ventilated children and their primary caregivers plus the associated social and economic burdens: a prospective study

M Seear, A Kapur, D Wensley, K Morrison… - Archives of disease in …, 2016 - adc.bmj.com
Background Despite the obvious challenges faced by families caring for children on home
ventilation, there is surprisingly little research into the details of their daily lives. In particular …