Aim: To estimate the incidence of life-limiting conditions requiring palliative care in New Zealand children.
Methods: Mortality data was obtained for all children who died aged 0-17 years during the period 1996-1998. Based on the cause of death and hospitalisation data, cases were classified as either 'palliative' or 'not palliative'. A separate analysis was performed to allow comparison with overseas estimates of paediatric palliative care need.
Results: Of a total of 2,122 deaths during the study period, 348 cases (16%) were assessed as potentially having required palliative care, giving a rate of 1.14 per 10 000 children per year. 37% of these deaths were due to cancer, 11% cardiac conditions, 24% congenital anomalies, and 28% other conditions. 29% of these children died in hospital.
Conclusions: The findings of this study are consistent with estimates from overseas studies and will be valuable in planning paediatric palliative care services in New Zealand.