Regular ArticleWhat constitutes ‘balanced information in the practitioners’ portrayals of Down's syndrome?
References (34)
Down's syndrome: cost, quality and value of life
Social Science and Medicine
(2001)- et al.
An exploration of midwives' and obstetricians' knowledge of genetic screening in pregnancy and their perception of appropriate counseling
Midwifery
(2001) - et al.
Probabilities and health risks: a qualitative approach
Social Science and Medicine
(1998) - et al.
Why women say yes to prenatal diagnosis
Social Science and Medicine
(1997) - et al.
Down's syndrome screening in the UK in 1998
Lancet
(1999) - et al.
Too many choices? Hospital and community staff reflect on the future of prenatal screening
Social Science and Medicine
(2002) - et al.
Is nondirectiveness possible within the context of antenatal screening and testing?
Social Science and Medicine
(2002) - et al.
What parents are told after prenatal diagnosis of a sex chromosome abnormality: interview and questionnaire study
British Medical Journal
(2001) - et al.
Enabling education: experiences in special and ordinary schools
(1998) - Alderson, P, Farsides, B, Williams, C, 2001, Cross currents in genetics and ethics around the millenium – final report,...
Examining ethics in practice: health service professionals' evaluations of in-hospital ethics seminars
Nursing Ethics
Attitudes towards termination for fetal abnormality: comparisons in three European countries
Clinical Genetics
More training is needed in health care of people with learning disabilities (letter)
British Medical Journal
From a different planet: women who choose to continue their pregnancy after a diagnosis of Down's syndrome
The Practising Midwife
Eugenics and the new genetics in Britain: examining contemporary professionals' accounts
Public Understanding of Science
Cited by (59)
Negotiating risk and choice in multifetal pregnancies
2020, Social Science and MedicineCitation Excerpt :It is during the consultation process that, chances of slippage between choice and subtle, if unintentional, coercion by physicians can occur (Williams et al., 2002b). In an effort to treat patients as active partners in consultation, the ‘inclusive approach’ in fetal medicine most commonly relies on a non-directive consultation process where doctors make suggestions to patients about the best courses of action they should take, rather than tell them (ACOG Recommendations, 2017; Williams et al., 2002b). It is possible that the very offer or suggestion made during consultation may be seen as a recommendation (Williams, 2006), placing the obligation of the eventual decision on the female as a potential mother.
Down syndrome: An integrative review
2018, Journal of Neonatal NursingCitation Excerpt :The doctors were aware that how they described Down syndrome might affect the decisions made by pregnant women. Many doctors gained their information about Down syndrome from textbooks, yet textbooks are written from a medical model approach focusing on the potential problems (Williams et al., 2002). Differences in culture and ethnicity can impact prenatal screening discussion and decision making.
Experience as knowledge: Disability, distillation and (reprogenetic) decision-making
2017, Social Science and MedicineThe expressivist objection to prenatal testing: The experiences of families living with genetic disease
2014, Social Science and MedicineNon-Invasive Prenatal Testing: Ethics and Policy Considerations
2014, Journal of Obstetrics and Gynaecology CanadaCitation Excerpt :In the current system of prenatal screening, limited pre-test counselling is offered with more extensive counselling available if a high-risk result is returned. Numerous studies have critiqued this model, pointing out that the current system results in decisions thatcannot be considered “informed.”98,99,106,112,128–133 With NIPT,if the bulk of counselling takes place before the test, the resources required to conduct this counselling will increase dramatically.71,91,121
Expressivist objections to prenatal screening and testing: Perceptions of people living with disability
2023, Sociology of Health and Illness
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(Correspondence to: CW E-mail: [email protected])