Experience of care according to the modified Adolescent Friendly Hospital Survey and the associations of individual questions with health-related quality of life (PedsQL and 16D) and transition readiness before transfer of care
| Adolescent Friendly Hospital Survey questions | The number of responses of the two alternatives True/somewhat true or false | PedsQL Mean total scores in the groups responding true/somewhat true or false (p value) | 16D Mean single-index scores in the groups responding true/somewhat true or false (p value) | ON TRAC Mean total scores in the groups responding true/somewhat true or false (p value) |
| I felt welcome in the hospital. | 459 (91%)/46 |
76.9/72.7
(0.115) |
0.87/0.83
(0.024)* |
47.3/45.8
(0.203) |
| The hospital provided an age-appropriate environment for me. | 293 (58%)/209 |
76.7/76.7
(0.600) |
0.87/0.87
(0.739) |
47.6/46.6
(0.095) |
| I felt respected as a person by my treating team. | 451 (89%)/55 |
77.1/71.3
(0.037)* |
0.87/0.84
(0.072) |
47.3/46.4
(0.503) |
| I fully understood the health information provided. | 402 (80%)/103 |
78.0/70.9
(<0.001)* |
0.87/0.84
(0.005)* |
48.3/42.8
(<0.001)* |
| I received enough information about my medical problems. | 435 (86%)/70 |
78.0/70.9
(0.001)* |
0.87/0.84
(0.003)* |
47.8/43.1
(<0.001)* |
| I was sufficiently involved in decisions about my care and/or treatment. | 391 (80%)/101 |
77.3/73.5
(0.013)* |
0.87/0.85
(0.074) |
48.1/44.3
(<0.001)* |
| I felt comfortable to ask questions about my health and well-being. | 426 (84%)/79 |
77.5/71.0
(0.001)* |
0.87/0.84
(0.026)* |
47.8/43.6
(<0.001)* |
| I spent at least some of the consultation alone without my parents | 328 (65%)/177 |
77.8/73.8
(0.004)* |
0.88/0.84
(<0.001)* |
48.1/45.5
(<0.001)* |
In PedsQL (maximum score 100), 16D (maximum score 1.00) and ON TRAC (maximum score 56), higher scores indicate better health-related quality of life and better transition readiness.
*Statistically significant difference, p<0.05 (Mann-Whitney U) between groups according to true and somewhat true or false answers in Adolescent Friendly Hospital Survey questions and health-related quality of life and transition readiness.
ON TRAC, Am I ON TRAC for Adult Care Questionnaire; PedsQL, Pediatric Quality of Life Inventory.