Before transfer of care | After transfer of care | |||||
Total | FIN | AUS | Total | FIN | AUS | |
N (%) | 512 (100) | 253 (49.4) | 259 (50.6) | 336 (65.6) | 199 (78.7) | 137 (52.9) |
Male | 250 (48.8) | 118 (46.6) | 132 (51.0) | 147 (43.9) | 85 (42.7) | 62 (45.3) |
Female | 258 (50.4) | 132 (52.2) | 126 (48.6) | 186 (55.5) | 112 (56.3) | 74 (54.0) |
Other/missing | 4 (0.8) | 3 (1.2) | 1 (0.4) | 3 (0.6) | 2 (1.0) | 1 (0.7) |
Mean age (SD) at survey completion | 17.8 (1.2) | 17.2 (1.2) | 18.4 (0.7) | 18.9 (1.2) | 18.3 (1.1) | 19.8 (0.8) |
Diabetes | 17.4 (0.9) | 16.9 (0.7) | 18.2 (0.6) | 18.5 (1.0) | 18.1 (0.7) | 19.6 (0.6) |
Neurology | 17.9 (1.1) | 16.6 (0.7) | 18.3 (0.8) | 19.3 (1.2) | 17.7 (0.7) | 19.9 (0.7) |
GI disease | 18.7 (0.8) | 18.8 (0.9) | 18.6 (0.7) | 19.8 (0.7) | 19.8 (0.5) | 19.9 (0.8) |
Rheumatology | 16.3 (0.7) | 16.1 (0.5) | 18.1 (0.4) | 17.3 (0.7) | 17.3 (0.6) | 19.2 (0.4) |
Other | 18.5 (0.8) | – | 18.5 (0.8) | 19.9 (1.0) | – | 19.9 (1.0) |
Cardiovascular | 18.2 (0.8) | 17.8 (0.7) | 18.6 (0.7) | 19.3 (1.0) | 18.7 (0.7) | 20.0 (1.0) |
Nephrology | 18.5 (0.8) | 19.2 (0.6) | 18.2 (0.6) | 19.7 (0.6) | 20.3 (0.5) | 19.3 (0.4) |
Mean age (SD) at diagnosis | 7.3 (5.7) |
AUS, Australia; FIN, Finland; GI, gastrointestinal.