Table 1

Demographic and clinical characteristics of adolescents before and after the transfer of care to adult healthcare

Before transfer of careAfter transfer of care
TotalFINAUSTotalFINAUS
N (%)512 (100)253 (49.4)259 (50.6)336 (65.6)199 (78.7)137 (52.9)
 Male250 (48.8)118 (46.6)132 (51.0)147 (43.9)85 (42.7)62 (45.3)
 Female258 (50.4)132 (52.2)126 (48.6)186 (55.5)112 (56.3)74 (54.0)
 Other/missing4 (0.8)3 (1.2)1 (0.4)3 (0.6)2 (1.0)1 (0.7)
Mean age (SD) at survey completion17.8 (1.2)17.2 (1.2)18.4 (0.7)18.9 (1.2)18.3 (1.1)19.8 (0.8)
 Diabetes17.4 (0.9)16.9 (0.7)18.2 (0.6)18.5 (1.0)18.1 (0.7)19.6 (0.6)
 Neurology17.9 (1.1)16.6 (0.7)18.3 (0.8)19.3 (1.2)17.7 (0.7)19.9 (0.7)
 GI disease18.7 (0.8)18.8 (0.9)18.6 (0.7)19.8 (0.7)19.8 (0.5)19.9 (0.8)
 Rheumatology16.3 (0.7)16.1 (0.5)18.1 (0.4)17.3 (0.7)17.3 (0.6)19.2 (0.4)
 Other18.5 (0.8)18.5 (0.8)19.9 (1.0)19.9 (1.0)
 Cardiovascular18.2 (0.8)17.8 (0.7)18.6 (0.7)19.3 (1.0)18.7 (0.7)20.0 (1.0)
 Nephrology18.5 (0.8)19.2 (0.6)18.2 (0.6)19.7 (0.6)20.3 (0.5)19.3 (0.4)
Mean age (SD) at diagnosis7.3 (5.7)
  • AUS, Australia; FIN, Finland; GI, gastrointestinal.