Before transfer of care, mean | One year after transfer of care, mean | |||||
All | FIN | AUS | All | FIN | AUS | |
PedsQL (N) | (487–488) | (252) | (235–236) | (334–335) | (199) | (135–136) |
Total | 76.5 | 80.6 | 72.2 | 78.3 | 80.1 | 75.7* |
Physical | 79.5 | 85.1 | 73.4 | 79.9 | 84.3 | 73.5 |
Psychosocial | 74.9 | 78.2 | 71.4 | 77.5* | 77.9 | 76.8*† |
Emotional | 71.2 | 74.1 | 68 | 72.6 | 72.4 | 72.8 |
Social | 83.8 | 88 | 79.4 | 86.8* | 88.9 | 83.7* |
School | 69.5 | 72.3 | 66.6 | 73.0* | 72.4 | 73.9* |
16D (N) | (486–493) | −251 | (235–242) | (329–336) | −199 | (130–137) |
Total | 0.866 | 0.905 | 0.825 | 0.868 | 0.894 | 0.829 |
Vitality | 0.779 | 0.811 | 0.745 | 0.763‡ | 0.774‡ | 0.748 |
Vision | 0.927 | 0.935 | 0.919 | 0.931 | 0.941 | 0.915 |
Breathing | 0.85 | 0.941 | 0.756 | 0.868‡ | 0.949 | 0.75 |
Distress | 0.717 | 0.792 | 0.639 | 0.712 | 0.751‡§ | 0.656‡ |
Hearing | 0.969 | 0.976 | 0.961 | 0.966 | 0.97 | 0.96 |
Sleeping | 0.762 | 0.816 | 0.706 | 0.764 | 0.801‡ | 0.71 |
Eating | 0.981 | 0.995 | 0.967 | 0.985 | 0.996 | 0.969 |
Discomfort and symptoms | 0.795 | 0.827 | 0.761 | 0.798 | 0.826 | 0.758 |
Speech | 0.928 | 0.951 | 0.903 | 0.943‡ | 0.963 | 0.915 |
Physical appearance | 0.774 | 0.862 | 0.683 | 0.771 | 0.846‡ | 0.661‡ |
School and hobbies | 0.814 | 0.855 | 0.771 | 0.82 | 0.846 | 0.782 |
Mobility | 0.972 | 0.989 | 0.953 | 0.967 | 0.985 | 0.941 |
Friends | 0.877 | 0.949 | 0.801 | 0.883 | 0.924‡§ | 0.824‡ |
Mental function | 0.918 | 0.947 | 0.888 | 0.914 | 0.928‡ | 0.893 |
Excretion | 0.896 | 0.911 | 0.88 | 0.879‡ | 0.897 | 0.852‡ |
Depression | 0.806 | 0.832 | 0.778 | 0.791‡ | 0.812‡ | 0.761‡ |
*Statistically significant change for better (p<0.05, Wilcoxon signed-rank test).
†Change is more than the minimal clinically important difference (online supplemental file 2).10 22
‡Change is more than the minimum important change, that is, at least ±0.015.25
§Statistically significant change for worse (p<0.05, Wilcoxon signed-rank test).
AUS, Australia; FIN, Finland; PedsQL, Pediatric Quality of Life Inventory.