Planned major operations related to the condition | No planned major operations |
|
| One planned major operation |
|
| Two planned major operations |
|
| Six planned major operations |
|
Planned minor operations related to the condition | No planned minor operations |
|
| One planned minor operation |
|
| Two planned minor operations |
|
| Six planned minor operations |
|
Emergency major operations related to the condition | No emergency major operations |
|
| One emergency major operation |
|
| Two emergency major operations |
|
| Six emergency major operations |
|
Emergency minor operations related to the condition | No emergency minor operations |
|
| One emergency minor operation |
|
| Two emergency minor operations |
|
| Six emergency minor operations |
|
Infections treated in hospital | No infections treated in hospital |
|
| One infection treated in hospital |
|
| Two infections treated in hospital |
|
| Six infections treated in hospital |
|
Child’s quality of life | Good quality of life |
|
| Fair quality of life |
|
| Poor quality of life |
|
How long the child survived after their diagnosis | More than 20 years, without any expectation that their surgical condition would shorten their life expectancy |
|
| 20 years |
|
| 5 years |
|
| 1 year |
|
| 6 months |
|
| 1 month |
|