Parent or carer or treated as a child | Healthcare professional | General population | |
n=253 | n=114 | n=753 | |
Age, mean (SD) | 45.3 (14.9) | 42.3 (9.9) | 50.1 (17.0) |
Gender | |||
Female | 192 (75.9%) | 66 (57.9%) | 412 (54.7%) |
Male | 61 (24.1%) | 47 (41.23%) | 332 (44.1%) |
Other | 0 (0.0%) | 0 (0.0%) | 4 (0.5%) |
Prefer not to say | 0 (0%) | 1 (0.88%) | 5 (0.7%) |
Region | |||
England: North East | 33 (4.4%) | ||
England: North West | 80 (10.6%) | ||
England: Yorkshire and the Humber | 59 (7.8%) | ||
England: East Midlands | 56 (7.4%) | ||
England: West Midlands | 65 (8.6%) | ||
England: East of England | 72 (9.6%) | ||
England: London | 92 (12.2%) | ||
England: South East | 114 (15.1%) | ||
England: South West | 65 (8.6%) | ||
Northern Ireland | 19 (2.5%) | ||
Scotland | 57 (7.6%) | ||
Wales | 41 (5.4%) | ||
Ethnicity | |||
Asian and Asian British | 56 (7.4%) | ||
Black, black British, Caribbean or African | 16 (2.1%) | ||
Mixed or multiple ethnic groups | 4 (0.5%) | ||
Prefer not to answer | 9 (1.2%) | ||
White (British, Irish, Gypsy or Irish Traveller, Roma) | 625 (83.0%) | ||
White (other) | 43 (5.7%) | ||
Higher education | |||
Yes | 158 (62.5%) | ||
No | 95 (37.5%) | ||
Highest education | |||
Postgraduate degree or above/NVQ level 7–8 | 104 (13.8%) | ||
Undergraduate degree/diploma/NVQ level 5–6 | 230 (30.5%) | ||
A levels or Scottish Highers/HNC or equivalent/NVQ level 3–4 | 382 (50.7%) | ||
None of the above | 29 (3.9%) | ||
Prefer not to answer | 8 (1.1%) | ||
Healthcare professional | |||
Yes | 29 (3.9%) | ||
No | 724 (96.1%) | ||
Are you a parent or carer? | |||
Yes | 398 (52.9%) | ||
No | 355 (47.1%) | ||
Occupational group main earner in household | |||
Administrative and secretarial occupations | 27 (10.7%) | 112 (14.9%) | |
Caring, leisure and other service occupations | 14 (%) | 24 (3.2%) | |
Elementary occupations | 3 (1.1%) | 17 (2.3%) | |
Managers, directors and senior officials | 49 (19.4%) | 99 (13.1%) | |
Never employed | 0 (0.0%) | 5 (0.7%) | |
Pensioner | 26 (10.3%) | 145 (19.3%) | |
Process, plant and machine operatives | 3 (1.1%) | 13 (1.7%) | |
Professional/associate professional occupations | 70 (27.7%) | 135 (17.9%) | |
Sales and customer service occupations | 8 (3.2%) | 47 (6.2%) | |
Skilled trades occupations | 30 (11.9%) | 72 (9.6%) | |
Unemployed | 14 (5.5%) | 53 (7.0%) | |
Prefer not to answer | 9 (3.6%) | 31 (4.1%) | |
Marital status | |||
Divorced | 5 (1.9%) | 69 (9.2%) | |
Married/partner | 126 (49.8%) | 426 (56.6%) | |
Separated | 3 (1.2%) | 8 (1.1%) | |
Single | 9 (3.6%) | 215 (28.6%) | |
Widowed | 4 (1.6%) | 29 (3.9%) | |
Missing | 106 (41.9%) | 0 (0.0%) | |
Prefer not to answer | 0 (0.0%) | 6 (0.8%) | |
Have you experienced serious illness?*† | |||
Yes | 68 (26.9%) | 18 (15.8%) | 176 (23.4%) |
No | 177 (70.0%) | 92 (80.7%) | 562 (74.6%) |
Prefer not to answer | 8 (3.2%) | 4 (3.5%) | 15 (2.0%) |
Have you experienced serious illness in your family?*† | |||
Yes | 126 (49.8%) | 63 (55.3%) | 394 (52.3%) |
No | 121 (47.8%) | 47 (41.2%) | 338 (44.9%) |
Prefer not to answer | 6 (2.4%) | 4 (3.5%) | 21 (2.8%) |
Have you experienced serious illness as a carer for a family member?*† | |||
Yes | 64 (25.3%) | 27 (23.7%) | 130 (17.3%) |
No | 185 (73.1%) | 83 (72.8%) | 602 (79.9%) |
Prefer not to answer | 4 (1.6%) | 4 (3.5%) | 21 (2.8%) |
What is your role/specialism? | |||
Surgeon | 36 (31.6%) | ||
Anaesthetist | 34 (29.8%) | ||
Paediatrician | 7 (6.1%) | ||
Neonatologist | 10 (8.8%) | ||
Nurse | 12 (10.5%) | ||
Advanced nurse practitioner/specialist nurse | 10 (8.8%) | ||
Other | 1 (0.9%) | ||
Missing | 4 (3.5%) | ||
Highest current level of training (for surgeon, anaesthetist, paediatrician and neonatologist) | |||
Consultant or equivalent | 66 (57.9%) | ||
Registrar or equivalent | 19 (16.7%) | ||
Foundation or core trainee | 2 (1.8%) | ||
Missing | 27 (23.7%) | ||
Age category of child† | |||
My child has died | 4 (2.7%) | ||
Less than 1 year old | 6 (4.1%) | ||
1–5 years old | 46 (31.3%) | ||
6–10 years old | 35 (23.8%) | ||
11–18 years old | 35 (23.8%) | ||
More than 18 years old | 21 (14.3%) | ||
Proxy-report of your child’s quality of life† | |||
Good quality of life | 113 (76.9%) | ||
Fair quality of life | 28 (19.1%) | ||
Poor quality of life | 1 (0.7%) | ||
Prefer not to answer | 1 (0.7%) | ||
Missing | 4 (2.7%) |
Data are n (%) unless otherwise specified. Empty cells indicate question was not included in the demographics for that stakeholder.
*These questions included ‘in additional to having a child with a surgical condition’ in the survey administered to parents and carers, and people treated for surgical conditions as a child.
†Information only collected for parents or carers of a child (n=147).
HNC, Higher National Certificate; NVQ, National Vocational Qualification.