Table 1

Diagnoses of children undergoing tube weaning

Neurodevelopmental problems*1830%
Ex preterm915%
Gastro-oesophageal reflux813%
Neonatal surgical issues†1118%
Complex congenital heart disease712%
Renal: cystinosis, diabetes insipidus, haemolytic uraemic syndrome35%
Oncology: leukaemia, osteosarcoma23%
Weight faltering/food refusal23%
  • *Four children with developmental delay, two with autism spectrum, two epilepsy, one each with CHARGE syndrome, Costello syndrome, spina bifida, Edward syndrome, congenital myopathy, fetal alcohol syndrome, cerebral palsy, congenital zoster, chromosomal abnormality, undiagnosed syndrome.

  • †Three children with cleft palate, two with short bowel syndrome, two with diaphragmatic hernia, one each with Treacher Collins syndrome, tracheoesophageal fistula, exomphalos, anal agenesis.