Overview of study population and interviews
Family participants and identified | Child’s age at recruitment | Male or female | Able to take part in interview? | TfSL category | Number and location of interviews |
Child (C001) Mother (M001) Father (F001) | 5 Cancer | M | Yes | 1 |
|
Child (C002) Mother (M002) Brother (B002) | 17 Congenital | F | Yes | 2/3 |
|
Mother (M003) Father (F003) | 8 Congenital | F | No (non-verbal communication) | 3 |
|
Father (F004) | 8 Congenital | F | No (non-verbal communication) | 3 | 1. Home |
Child (C006) Mother (M006) | 6 Congenital | M | Yes | 1 |
|
Mother (M006) | 18 Congenital | M | No (non-verbal communication) | 4 |
|
Child (C007) Mother (M007) Father (F007) | 7 Cancer | M | Yes | 1 |
|
Child (C008) Mother (M008) Brother (B008) | 5 Congenital | M | Yes | 1 |
|
Child (C009) Mother (M009) Father (F009) | 11 Cancer | F | Yes | 1 |
|
Mother (M010) | 5 Congenital | M | No (too unwell) | 1/2 | 1. Ward |
Child (C011) Mother (M011) Step-father (F011) | 17 Congenital | F | Yes | 1 |
|
Child (C012) Mother (M012) | 14 Cancer | M | Yes | 1 | 1. Outpatients |
Child (C013) Mother (M013) | 14 Cancer | M | Yes | 2 (as a result of 1) |
|
Child (C014) Mother (M014) | 10 Congenital | M | Yes | 3 |
|
TfSL, Together for Short Lives.