Table 4

Overview of study population and interviews

Family participants and identifiedChild’s age at recruitmentMale or femaleAble to take part in interview?TfSL categoryNumber and location of interviews
Child (C001)
Mother (M001)
Father (F001)
5
Cancer
MYes1
  1. Home

  2. Ward

  3. Home

Child (C002)
Mother (M002)
Brother (B002)
17
Congenital
FYes2/3
  1. Home

  2. Home

  3. Home

Mother (M003)
Father (F003)
8
Congenital
FNo (non-verbal communication)3
  1. Home

  2. Home

  3. Home

Father (F004)8
Congenital
FNo (non-verbal communication)31. Home
Child (C006)
Mother (M006)
6
Congenital
MYes1
  1. Ward

  2. Outpatients

  3. Outpatients

Mother (M006)18
Congenital
MNo (non-verbal communication)4
  1. Home

  2. Home

  3. Home

Child (C007)
Mother (M007)
Father (F007)
7
Cancer
MYes1
  1. Ward

  2. Home

  3. Home

Child (C008)
Mother (M008)
Brother (B008)
5
Congenital
MYes1
  1. Home

  2. Home

  3. Home

Child (C009)
Mother (M009)
Father (F009)
11
Cancer
FYes1
  1. Outpatients

  2. Ward

  3. Home

Mother (M010)5
Congenital
MNo (too unwell)1/21. Ward
Child (C011)
Mother (M011)
Step-father (F011)
17
Congenital
FYes1
  1. Ward

  2. Home

  3. Home

Child (C012)
Mother (M012)
14
Cancer
MYes11. Outpatients
Child (C013)
Mother (M013)
14
Cancer
MYes2 (as a result of 1)
  1. Home

  2. Home

Child (C014)
Mother (M014)
10
Congenital
MYes3
  1. Home

  2. Home

  3. Home

  • TfSL, Together for Short Lives.