Table 1

Participant characteristics at interview

Patients (n=8)Parents (n=15) (14 families)
CharacteristicsNCharacteristicsN
Gender
  Female4 Female13
  Male4 Male2
Percentage of deprivation (assessed by multiple indices of deprivation)
  10% least deprived1 10% least deprived2
  20% least deprived2 20% least deprived2
  30% least deprived0 30% least deprived0
  40% least deprived0 40% least deprived1
  50% least deprived2 50% least deprived2
  50% most deprived1 50% most deprived3
  40% most deprived0 40% most deprived0
  30% most deprived1 30% most deprived2
  20% most deprived0 20% most deprived0
  10% most deprived1 10% most deprived3
Age (years) Age of child (years)
  Under 8 (Interviewed parent only) Under 86
  8–124 8–124
  13–154 13–154
Ethnicity Ethnicity of child
  Caucasian7 Caucasian10
  Asian1 Asian2
  Mixed0 Mixed1
  Unknown0 Unknown1
Diagnosis (patient may have more than 1) Diagnosis of child (may have more than 1)
  Glioma4 Glioma6
  Astrocytoma3 Astrocytoma4
  NF13 NF14
  Medulloblastoma2 Medulloblastoma3
  Other0 Other1
Years since diagnosis Years since child’s diagnosis
 <1 year1 <1 year3
  1<2 years1 1<2 years2
  2<5 years0 2<5 years2
  5<10 years4 5<10 years5
 >10 years2 >10 years2
Age at diagnosis Child’s age at diagnosis
 <1 year0 <1 year2
  1<2 years2 1<2 years3
  2<5 years2 2<5 years4
  5<10 years3 5<10 years4
 >10 years1 >10 years1

  • NF1, neurofibromatosis type 1.