Scores of the prospective pilot
| Item* | n | Median | Range (min–max) |
| Basics | |||
| Ease of use | 9 | 3 | 3 (1–4) |
| Completeness | 9 | 4 | 2 (3–5) |
| Social/psychosocial | |||
| Ease of use | 9 | 3 | 3 (1–4) |
| Completeness | 9 | 4 | 2 (3–5) |
| Needs, wishes, goals | |||
| Ease of use | 9 | 3 | 3 (1–4) |
| Completeness | 9 | 4 | 2 (3–5) |
| Medication and nutrition | |||
| Ease of use | 8 | 3 | 4 (1–5) |
| Completeness | 7 | 4 | 3 (2–5) |
| Symptomatology | |||
| Ease of use | 8 | 3.5 | 4 (1–5) |
| Completeness | 8 | 4 | 2 (3–5) |
| Complementary care/wellness | |||
| Ease of use | 9 | 3 | 4 (1–5) |
| Completeness | 8 | 3 | 1 (3–4) |
| IPPCP – general | |||
| Ease of use | 9 | 3 | 3 (1–4) |
| Completeness | 9 | 5 | 3 (2–5) |
| Usability | 9 | 3 | 4 (1–5) |
| Change compared with current situation | 9 | 4 | 4 (1–5) |
| Manual | |||
| Completeness | 8 | 4.5 | 2 (3–5) |
| Amount of information | 8 | 3 | 2 (3–5) |
| Change compared with use of guideline | 8 | 4 | 3 (2–5) |
| Worthwhile addition to IPPCP | 8 | 4.5 | 4 (1–5) |
*All scoring items ranged from 1 to 5. For ease of use, this was from ‘very bad’ (1) to ‘very good’ (5); for completeness, this was from ‘very incomplete’ (1) to ‘very complete’ (5); for usability, this was from ‘very unusable’ (1) to ‘very usable’ (5); for change compared with current situation, this was from ‘major worsening’ (1) to ‘major improvement’ (5); for amount of information, this was from ‘too little information’ (1) to ‘too much information’ (5); for change compared with use of the guideline, this was from ‘very negative change’ (1) to ‘very positive change’ (5); for worthwhile addition to IPPCP, this was from ‘very unworthwhile addition’ (1) to ‘very worthwhile addition’ (5).
IPPCP, individualised paediatric palliative care plan.