Table 1

Involved professionals

Core group Working groups
 Paediatrician specialised in palliative carePHY/PSY
 Paediatric oncologistPHY
 Paediatrician trained in epidemiologyPHY
 PaediatricianPHY/PSY
 Director non-profit paediatric palliative care organisationPSY
 Director paediatric home care organisationPHY
 Board member paediatric nurse organisationPHY
 PhD student paediatric oncologyPHY/PSY
Project group
 Parent of a deceased girlPHY
 Parent of a deceased boyPSY
 Paediatric oncologistPHY
 Paediatric oncologistPHY/PSY
 Paediatrician specialised in hereditary and congenital diseasesPHY
 Paediatric intensive care unit nursePHY
 General practitionerPHY/PSY
 Paediatric nursePHY
 General paediatricianPHY
 Staff member non-profit paediatric oncology organisationPSY
 Staff member non-profit paediatric palliative care organisationPSY
 Child life specialistPSY
 Spiritual caretakerPSY
Proofreaders
 Paediatric oncologist
 Hospital pharmacist
 Paediatric neurologist
 Paediatric critical care specialist
 Paediatric pulmonologist
 Paediatric anaesthetist
 Physician assistant specialised in paediatric pain
  • PHY, working group focusing on physical aspects of paediatric palliative care, PSY, working group focusing on psychosocial aspects of paediatric palliative care.