Table 1

The principal clinical characteristics of the children enrolled in the study

Number of patients90, female 45 (50%), male 45 (50%)
Patient age rangeMedian 8.8 years, IQR 2.6–15.1 years, range 0.4–17.8 years
Time on ventilatory supportMedian 3.4 years, IQR 1.4–8.4 years, range 0.2–16.7 years
SchoolingFull-time school: 42 (46.7%)
Part-time or home school: 16 (17.8%)
Too young for school: 32 (35.5%)
Diagnostic groupAirway obstruction: 29 (32.2%)
Chronic lung disease: 25 (27.8%)
Neuromuscular disease: 24 (26.6%)
Central hypoventilation: 7 (7.8%)
Spinal cord injury: 5 (5.6%)
Type of supportTracheostomy alone: 15 (16.7%)
Tracheostomy plus ventilation: 13 (14.4%)
BiPAP: 40 (44.5%)
CPAP: 22 (24.4%)
Daily ventilationTracheostomy alone: 0 h
Tracheostomy–ventilation: median 11.0 h, range 9–24 h
BiPAP: median 10 h, IQR 8.5–12 h, range 4–18 h
CPAP: median 9 h, IQR 8.5–10 h, range 6–12 h
  • Single values are expressed as numbers plus percentages of the total in brackets. All variables were non-normally distributed so average values and dispersion are expressed as median plus IQR and full range.

  • BiPAP, bilevel positive airway pressure; CPAP, continuous positive airway pressure.