Demographic information | Number |
---|---|
Ethnicity (of child) | |
White | |
British | 14 |
European | 1 |
Asian | |
Bangladeshi | 1 |
Pakistani | 1 |
Other | 1 |
Mixed | |
White/Black African | 1 |
White/Black Other | 1 |
Congenital heart diagnoses | |
Hypoplastic left heart syndrome (HLHS) | 5 |
Functionally single ventricle disease (not HLHS) | 7 |
Functionally single ventricle disease (not HLHS)* | 1 |
Transposition of the great arteries* | 3 |
Tetralogy of Fallot | 1 |
Anomalous left coronary artery from pulmonary artery (ALCAPA) | 1 |
Total anomalous pulmonary venous connection | 1 |
Ventricular septal defect (VSD)* | 1 |
Index surgery | |
Norwood Stage 1 procedure | 5 |
Systemic to pulmonary arterial shunt | 10 |
Arterial switch procedure | 2 |
ALCAPA repair | 1 |
Total anomalous pulmonary venous drainage repair | 1 |
Closure of VSD | 1 |
Educational history (primary caregiver) | |
Learning difficulty | 1 |
Primary/secondary school | 11 |
Graduate | 5 |
Postgraduate | 3 |
*Significant medical comorbidity.