Table 1

Eligibility for the systematic evidence mapping of long-term care studies in paediatrics

Inclusion criteria
Focus—views/experiences of service provision for children, young people or young adults (CYP) with long-term conditions; these may include multidisciplinary configurations of services, eg inclusive education; mental healthcare for CYP whose primary condition is not mental health; care by staff outside clinical settings; views on ‘non-adherance’
Participants—children, young people or young adults (authors’ definition) with a long-term condition, their carers, clinicians or support staff who work with children with long-term conditions
 Design—primary or secondary studies collecting qualitative data and using qualitative methods for analysis*
 Date—published 2004 onwards
 Country—carried out in England or Wales (author institutions used as proxy if not directly reported). We kept on file otherwise eligible work from elsewhere in UK and Europe
Date of publication—since long-term care in England and Wales has changed considerably over time, we considered the past 10 years to be an appropriate cut-off in terms of health technologies, systems for delivery and policy interests
Country—studies carried out in England or Wales
Differences in the organisation of healthcare and the wider social context, across Europe and North America (and increasingly other parts of the UK) mean that comparative work within the UK and more broadly may be an important area for a more extensive piece of work
Exclusion criteria
  • Opinion pieces and best practice reviews with no methods section

  • Unavailable online

  • Without abstracts—(records of these studies were retained for possible future work)

  • Surveys

  • Studies to inform the development of a quantitative tool or instrument

  • Studies exploring: views of provision for children in general; palliative care; screening for genetically inherited conditions; mental health provision for CYP with a primary mental health diagnosis (but records retained for future work); experiences of research participation

Practical grounds of volume control in a rapid review
  • *For a discussion of the characteristics of qualitative approaches, see Spencer et al.10