Record review: assessments, interventions, and medications prior to baseline for 275 children with progressive, non-curable conditions
| Assessments, interventions and medications | Ill children |
|---|---|
| Assessments | |
| PT/OT (n=274) | 249 (90.5) |
| Dietician (n=248) | 246 (89.5) |
| Home nurse (n=270) | 198 (72.8) |
| Selected interventions | |
| Gastric or jejunal tube | 148 (53.8) |
| Oxygen by nasal cannula or mask | 29 (10.6) |
| Limits of care/‘Do not attempt resuscitation’ orders | 42 (15.3) |
| Routine suctioning | 50 (18.4) |
| Non-invasive ventilation | 23 (8.4) |
| Clinical trial | 20 (7.3) |
| Total parenteral nutrition | 4 (1.5) |
| Nasogastric tube | 16 (5.8) |
| Invasive ventilator | 13 (4.7) |
| Complementary/alternative modalities | 7 (2.5) |
| Complementary/alternative medications | 6 (2.2) |
| Surgery or interventional radiology procedures | 275 (100) |
| Total number prior to baseline | 11.4±5.5; 6–41* |
| Used with surgery or interventional radiology procedures | |
| General anaesthesia | 170 (61.8) |
| Total number of times anaesthesia used | 3.23±4.8; 0–36* |
| Sedation | 61 (22.2) |
| Total number of times sedation used | 0.6±1.6; 0–11* |
| EEG prior to baseline | 149 (54.2) |
| Total number of EEGs | 2.6±4.1; 0–30* |
| Abnormal EEG prior to baseline | 125 (45.5) |
| Medications | |
| Total number of different drug categories | 3.5±2.3; 0–12* |
| Anticonvulsants | 152 (55.5) |
| Antacids | 125 (45.6) |
| Metabolic | 118 (43.1) |
| Anxiolytic | 111 (40.7) |
| Other | 108 (39.4) |
| Laxatives | 97 (35.4) |
| Acetaminophen/NSAIDs | 52 (19) |
| Melatonin/hypnotic | 48 (17.5) |
| Pro-kinetics | 43 (15.8) |
| Cardiac | 27 (9.9) |
| Antispasticity | 27 (9.9) |
| Neuroleptic | 21 (7.7) |
| Opiates | 21 (7.7) |
| Antiemetics | 12 (4.4) |
| Anaesthetics | 3 (1.1) |
Values are number (%) unless otherwise indicated.
*Plus-minus values are means±SD; followed by minimum to maximum.