Social circumstances of patients at time of first home discharge on HPN or after SBTx
| Parameter | HPN n=34 | SBTx n=30 | Combined n=64 |
|---|---|---|---|
| Young age* | 16 (48%) | 4 (13%) | 20 (31%) |
| Enteropathy aetiology | 9 (27%) | 2 (7%) | 11 (17%) |
| Single parent household | 7 (20%) | 6 (20%) | 13 (20%) |
| Lack of support from extended family | 14 (41%) | 10 (33%) | 24 (38%) |
| Parental learning difficulty/disability | 8 (24%) | 8 (26%) | 16 (25%) |
| Mental health problem disclosed | 5 (15%) | 5 (17%) | 10 (16%) |
| Rehousing was needed prior to discharge | 14 (41%) | 3 (10%) | 17 (27%) |
| Parental separation within 2 years of discharge† | 3 (9%) | 5 (17%) | 8 (13%) |
| Compliance partial or poor | 17 (50%) | 17 (57%) | 34 (53%) |
*Young age defined as less than 36 months.
†Parents in two families being trained for HPN separated before discharge and parents of two intestinal transplant recipients had separated before the transplant, (%) percentages rounded up to whole numbers.
HPN, home parenteral nutrition; SBTx, small bowel transplantation.