Parameter | HPN n=34 plus CRSBI=14* | HPN n=34 No CRSBI=20* | p Value (Fishers exact test) |
---|---|---|---|
Young age | |||
Less than 3 years | 10 | 6 | 0.0349 |
3 years and older | 4 | 14 | |
Enteropathy aetiology | 6 | 3 | 0.116 |
Other IF (18SBS, 7 dsymotility) | 8 | 17 | |
Single parent only | 2 | 5 | 0.670 |
Two parents/carers | 12 | 15 | |
Lack of extended family support | 4 | 10 | 0.299 |
Family support available | 10 | 10 | |
Parental disadvantage† | 6 | 2 | 0.043 |
No disadvantage identified | 8 | 18 | |
Mental health problem identified | 1 | 4 | 0.377 |
No mental health problem | 13 | 16 | |
Rehousing needed | 6 | 8 | 1.00 |
No rehousing | 8 | 12 | |
Parents separated after discharge | 0 | 3 | 0.251 |
Parents remained together | 14 | 17 | |
Compliance partial or poor | 10 | 7 | 0.079 |
Compliance good | 4 | 13 | |
SBTx n=30 plus rejection=8* | SBTx n=30 No rejection=22* | ||
Young age | |||
Less than 3 years | 4 | 4 | 0.158 |
3 years and older | 4 | 18 | |
Enteropathy aetiology | 1 | 1 | 0.469 |
Other IF (18SBS, 7 dsymotility) | 7 | 21 | |
Single parent only | 3 | 3 | 0.300 |
Two parents/carers | 5 | 19 | |
Lack of extended family support | 5 | 5 | 0.078 |
Family support available | 3 | 17 | |
Parental disadvantage† | 3 | 5 | 0.643 |
No disadvantage identified | 5 | 17 | |
Mental health problem identified | 3 | 2 | 0.102 |
No mental health problem | 5 | 20 | |
Rehousing needed | 2 | 1 | 0.166 |
No rehousing | 6 | 21 | |
Parents separated after discharge | 2 | 3 | 0.589 |
Parents remained together | 6 | 19 | |
Compliance partial or poor | 7 | 10 | 0.092 |
Compliance good | 1 | 12 | |
HPN and SBTx—plus CRBSI or rejection | HPN and SBTx—no CRBSI or rejection | ||
Compliance partial or poor | 17 | 17 | 0.0079 |
Compliance good | 5 | 25 |
p Values calculated using two-tailed values from Fisher's exact test (GraphPad Instat July 2009).
*n=number of patients affected, not episodes.
†Defined at least one parent who had one of more of the following: non-English speaking n=11; limited education (unable to read) n=5; physical limitation n=3.
CRBSI, catheter-related blood stream infection; HPN, home parenteral nutrition; IF, intestinal failure; SBS, short bowel syndrome; SBTx, small bowel transplantation.