Table 1

Distribution of impairments, sociodemographic characteristics, pain, emotional difficulties score and total stress score

Impairments of young people
Walking ability as captured by gross motor function
 I. Walks without limitation199(46%)226(34%)
 II. Walks with limitation84(20%)113(17%)
 III. Walks with assistive devices58(14%)85(13%)
 IV. Unable to walk, limited self-mobility50(12%)90(14%)
 V. Unable to walk, severely limited self-mobility37(9%)143(22%)
 Information not available1(0%)0(0%)
 No seizures, not on medication367(86%)464(71%)
 No seizures, on medication23(5%)73(11%)
 Seizures less than once a month19(4%)46(7%)
 Seizures between once a month and once a week9(2%)24(4%)
 Seizures more than once a week6(1%)45(7%)
 Information not available5(1%)5(1%)
Intellectual ability
 IQ > 70286(67%)300(46%)
 IQ 50–70129(30%)169(26%)
 IQ < 5013(3%)187(28%)
 Information not available1(0%)1(0%)
Cerebral palsy subtype
 Unilateral spastic175(41%)208(32%)
 Bilateral spastic208(48%)354(54%)
 Information not available5(1%)5(1%)
Sociodemographic characteristics
 Southeast France41(10%)61(9%)
 Southwest France38(9%)57(9%)
 Southwest Ireland52(12%)76(12%)
 West Sweden40(9%)66(10%)
 North England73(17%)107(16%)
 Northern Ireland64(15%)88(13%)
 East Denmark53(12%)86(13%)
 Central Italy17(4%)42(6%)
 Northwest Germany51(12%)74(11%)
Age in years
 Information not available5(1%)9(1%)
Frequency of pain in previous week
 None of the time133(31%)180(27%)
 Once or twice143(33%)161(25%)
 A few times79(18%)140(21%)
 Fairly often29(7%)64(10%)
 Very often16(4%)38(6%)
 Every day29(7%)74(11%)
Severity of pain in previous week
 Very mild94(22%)100(15%)
 Very severe19(4%)13(2%)
Emotional difficulties score (by quartile)*
 Information not available4(1%)2(0%)
Total stress score (by quartile)†
 65 80118(28%)162(25%)
Information not available11(3%)13(2%)
  • *Higher scores indicate more emotional difficulties.

  • †Higher scores indicate more stress.