Self-reported (n=429) | Parent-reported (n=657) | |||
---|---|---|---|---|
n | (%) | n | (%) | |
Impairments of young people | ||||
Walking ability as captured by gross motor function | ||||
I. Walks without limitation | 199 | (46%) | 226 | (34%) |
II. Walks with limitation | 84 | (20%) | 113 | (17%) |
III. Walks with assistive devices | 58 | (14%) | 85 | (13%) |
IV. Unable to walk, limited self-mobility | 50 | (12%) | 90 | (14%) |
V. Unable to walk, severely limited self-mobility | 37 | (9%) | 143 | (22%) |
Information not available | 1 | (0%) | 0 | (0%) |
Seizures | ||||
No seizures, not on medication | 367 | (86%) | 464 | (71%) |
No seizures, on medication | 23 | (5%) | 73 | (11%) |
Seizures less than once a month | 19 | (4%) | 46 | (7%) |
Seizures between once a month and once a week | 9 | (2%) | 24 | (4%) |
Seizures more than once a week | 6 | (1%) | 45 | (7%) |
Information not available | 5 | (1%) | 5 | (1%) |
Intellectual ability | ||||
IQ > 70 | 286 | (67%) | 300 | (46%) |
IQ 50–70 | 129 | (30%) | 169 | (26%) |
IQ < 50 | 13 | (3%) | 187 | (28%) |
Information not available | 1 | (0%) | 1 | (0%) |
Cerebral palsy subtype | ||||
Unilateral spastic | 175 | (41%) | 208 | (32%) |
Bilateral spastic | 208 | (48%) | 354 | (54%) |
Dyskinetic | 28 | (7%) | 62 | (9%) |
Ataxic | 13 | (3%) | 28 | (4%) |
Information not available | 5 | (1%) | 5 | (1%) |
Sociodemographic characteristics | ||||
Regions | ||||
Southeast France | 41 | (10%) | 61 | (9%) |
Southwest France | 38 | (9%) | 57 | (9%) |
Southwest Ireland | 52 | (12%) | 76 | (12%) |
West Sweden | 40 | (9%) | 66 | (10%) |
North England | 73 | (17%) | 107 | (16%) |
Northern Ireland | 64 | (15%) | 88 | (13%) |
East Denmark | 53 | (12%) | 86 | (13%) |
Central Italy | 17 | (4%) | 42 | (6%) |
Northwest Germany | 51 | (12%) | 74 | (11%) |
Gender | ||||
Boys | 249 | (58%) | 376 | (57%) |
Girls | 180 | (42%) | 281 | (43%) |
Age in years | ||||
<13 | 27 | (6%) | 45 | (7%) |
13 | 99 | (23%) | 137 | (21%) |
14 | 85 | (20%) | 135 | (21%) |
15 | 91 | (21%) | 131 | (20%) |
16 | 76 | (18%) | 114 | (17%) |
17 | 47 | (11%) | 83 | (13%) |
>17 | 4 | (1%) | 12 | (2%) |
Information not available | 5 | (1%) | 9 | (1%) |
Pain | ||||
Frequency of pain in previous week | ||||
None of the time | 133 | (31%) | 180 | (27%) |
Once or twice | 143 | (33%) | 161 | (25%) |
A few times | 79 | (18%) | 140 | (21%) |
Fairly often | 29 | (7%) | 64 | (10%) |
Very often | 16 | (4%) | 38 | (6%) |
Every day | 29 | (7%) | 74 | (11%) |
Severity of pain in previous week | ||||
None | 130 | (30%) | 180 | (27%) |
Very mild | 94 | (22%) | 100 | (15%) |
Mild | 96 | (22%) | 133 | (20%) |
Moderate | 64 | (15%) | 176 | (27%) |
Severe | 26 | (6%) | 55 | (8%) |
Very severe | 19 | (4%) | 13 | (2%) |
Emotional difficulties score (by quartile)* | ||||
0–1 | 98 | (23%) | 179 | (27%) |
>1–3 | 146 | (34%) | 206 | (31%) |
>3–5 | 109 | (25%) | 164 | (25%) |
>5–10 | 72 | (17%) | 106 | (16%) |
Information not available | 4 | (1%) | 2 | (0%) |
Total stress score (by quartile)† | ||||
36–64 | 127 | (30%) | 163 | (25%) |
65 80 | 118 | (28%) | 162 | (25%) |
81–97 | 92 | (21%) | 167 | (25%) |
98–147 | 81 | (19%) | 152 | (23%) |
Information not available | 11 | (3%) | 13 | (2%) |
*Higher scores indicate more emotional difficulties.
†Higher scores indicate more stress.