Table 1

Distribution of impairments, sociodemographic characteristics, pain, emotional difficulties score and total stress score

Self-reported
(n=429)
Parent-reported
(n=657)
n(%)n(%)
Impairments of young people
Walking ability as captured by gross motor function
 I. Walks without limitation199(46%)226(34%)
 II. Walks with limitation84(20%)113(17%)
 III. Walks with assistive devices58(14%)85(13%)
 IV. Unable to walk, limited self-mobility50(12%)90(14%)
 V. Unable to walk, severely limited self-mobility37(9%)143(22%)
 Information not available1(0%)0(0%)
Seizures
 No seizures, not on medication367(86%)464(71%)
 No seizures, on medication23(5%)73(11%)
 Seizures less than once a month19(4%)46(7%)
 Seizures between once a month and once a week9(2%)24(4%)
 Seizures more than once a week6(1%)45(7%)
 Information not available5(1%)5(1%)
Intellectual ability
 IQ > 70286(67%)300(46%)
 IQ 50–70129(30%)169(26%)
 IQ < 5013(3%)187(28%)
 Information not available1(0%)1(0%)
Cerebral palsy subtype
 Unilateral spastic175(41%)208(32%)
 Bilateral spastic208(48%)354(54%)
 Dyskinetic28(7%)62(9%)
 Ataxic13(3%)28(4%)
 Information not available5(1%)5(1%)
Sociodemographic characteristics
Regions
 Southeast France41(10%)61(9%)
 Southwest France38(9%)57(9%)
 Southwest Ireland52(12%)76(12%)
 West Sweden40(9%)66(10%)
 North England73(17%)107(16%)
 Northern Ireland64(15%)88(13%)
 East Denmark53(12%)86(13%)
 Central Italy17(4%)42(6%)
 Northwest Germany51(12%)74(11%)
Gender
 Boys249(58%)376(57%)
 Girls180(42%)281(43%)
Age in years
 <1327(6%)45(7%)
 1399(23%)137(21%)
 1485(20%)135(21%)
 1591(21%)131(20%)
 1676(18%)114(17%)
 1747(11%)83(13%)
 >174(1%)12(2%)
 Information not available5(1%)9(1%)
Pain
Frequency of pain in previous week
 None of the time133(31%)180(27%)
 Once or twice143(33%)161(25%)
 A few times79(18%)140(21%)
 Fairly often29(7%)64(10%)
 Very often16(4%)38(6%)
 Every day29(7%)74(11%)
Severity of pain in previous week
 None130(30%)180(27%)
 Very mild94(22%)100(15%)
 Mild96(22%)133(20%)
 Moderate64(15%)176(27%)
 Severe26(6%)55(8%)
 Very severe19(4%)13(2%)
Emotional difficulties score (by quartile)*
 0–198(23%)179(27%)
 >1–3146(34%)206(31%)
 >3–5109(25%)164(25%)
 >5–1072(17%)106(16%)
 Information not available4(1%)2(0%)
Total stress score (by quartile)†
 36–64127(30%)163(25%)
 65 80118(28%)162(25%)
 81–9792(21%)167(25%)
 98–14781(19%)152(23%)
Information not available11(3%)13(2%)
  • *Higher scores indicate more emotional difficulties.

  • †Higher scores indicate more stress.