Table 1

Baseline characteristics and outcomes for patients receiving full, shared and hybrid care

OutcomeFullSharedHybridp Value
Number7710220
Mean age (years)9.3 (5.7)9.3 (5.4)10.5 (4.8)
Male475411
Female30489
Pancreatic sufficient941
Genetics
 dF508/dF50844%49%40%
 dF508/other39%41%40%
 Other/other17%10%10%
Nutrition
 Weight (kg)32.1 (19.8)30.3 (16.1)35.3 (17.6)0.5
 Height (cm)126 (35.0)129 (27.9)136 (24.6)0.5
 BMI (kg/m2)*17.1 (4.1)17.0 (2.9)18.1 (2.8)0.4
 Weight SDS−0.59 (1.34)−0.64 (1.45)−0.27 (1.32)0.6
 Height SDS−0.96 (1.44)−1.0 (1.50)−0.78 (1.37)0.8
 BMI SDS0.06 (1.0)0.04 (1.0)0.26 (1.2)0.7
Infection
 Airway cultures/year7.07 (3.1)7.0 (3.0)7.01 (2.4)
 Chronic PA2 (2.6%)9 (8.8%)1 (5%)0.2
Chronic therapies
 Tube fed6 (7.8%)3 (2.9%)0 (0%)0.2
 Macrolide36 (47%)45 (44%)12 (60%)0.4
 Nebulised antibiotics39 (51%)48 (47%)11 (55%)0.7
 Nebulised DNAse42 (55%)58 (57%)13 (65%)0.7
  • Data presented as mean and SD except

  • * where median and IQR presented.

  • BMI, body mass index; PA, Pseudomonas aeruginosa; SDS, SD score.