Proposal accepted by the European Academy of Paediatrics 2010
| European paediatricians, working together, will: |
| Provide sufficient services for expert diagnosis or confirmation of diagnosis |
| Ensure appropriate capacity and equal access to follow-up and management of children with rare diseases |
| Produce and adhere to good practice guidelines and implement outcome measures and quality control |
| Use and demonstrate a multidisciplinary approach in management of patients and families |
| Document and maintain a high level of expertise through publications, grants or honorary positions, teaching and training activities |
| Make a strong contribution to international research and support international trials of treatment of rare diseases |
| Provide epidemiological surveillance, such as by registries, preferably at a European level |
| Communicate with health authorities and policy makers in order to improve the finances for healthcare of children with rare diseases |
| Support, communicate with and advise patient rare disease networks and organisations |
| Collaborate with initiatives of the European Commission Rare Disease task force in developing national plans for integrated services and support for patients and families affected by rare diseases. |