Table 2

Characteristics of those with continued artificial feeding

Age (years)Intake kJ/kg
GenderStarted enteral feedingFirst seenDiagnosisDuration of follow-up (years)OM impairmentLearning disabilityPeakWhen last seenFeeding when last seenComment
1Female0.56.8Quadriplegic cerebral palsy1.4YesYes343180EnteralNot feasible to stop feeds completely; oromotor difficulties.
2Male111.3Quadriplegic cerebral palsy2.4YesYes176188EnteralSudden withdrawal by family led to major weight loss. Feeds restarted; unwilling to attempt withdrawal again.
3Male1.21.6Preterm, chronic lung disease3.7YesYes377255EnteralRapid withdrawal in another centre followed by chronic underweight and stunting. Feeding restarted after near fatal pneumonia. Major oromotor immaturity identified. Still under treatment.
4MaleBirth11.3Multiple orofacial anomalies and deafness3.2YesMild247146SupplementsMoved quickly from enteral to oral feeds; family unwilling to reduce oral supplements.
5MaleBirth6.1Tracheomalacia, multiple neonatal complications4.6NoYes339339SupplementsMoved quickly from enteral to oral feeds; family unwilling to reduce oral supplements.
6MaleBirth5.0Complex cyanotic cardiac anomaly1.4NoMild540180NGLong term partial tube feeding while awaiting definitive surgery; family poor attenders. Still under treatment.
7Male3.44.1Preterm, weight faltering2.7NoNo209146EnteralFamily reluctant to reduce feeds. Still under treatment.
8MaleBirth12.0Congenital herpes zoster1.3NoNo230205EnteralFamily and child reluctant to reduce feeds. Still under treatment.
9MaleBirth15.1Multiple congenital gut anomalies2.2NoMild322322NGUnwilling to reduce feeds; tube removed as inpatient aged 17. Insisted on restarting feeds after 10 days. Discharged to adult services.
  • OM, Oromotor.