Outcome (median change (IQR)) | n* | Without NH | n* | NH |
---|---|---|---|---|
Pulmonary function tests (% predicted) | ||||
FVC | 23 | 1.0 (−2.0 to 8.0) | 4 | −5.0 (−18.8 to 2.8) |
FEV | 23 | 0.0 (−3.0 to 7.0) | 4 | −6.5 (−22.0 to 3.0) |
RV/TLC | 20 | −0.03 (−0.068 to 0.028) | 4 | 0.075 (−0.003 to 0.168) |
MIP | 20 | 3.5 (−11.3 to 19.8) | 4 | −2.0 (−8.5 to 13.5) |
MEP | 20 | 2.5 (−18.8 to 18.8) | 4 | 2.5 (−7.5 to 38.8) |
Manual muscle strength (/10) | 24 | 0.5 (−0.1 to 0.9) | 4 | −0.7 (−1.0 to 0.0) |
Child Health Questionnaire | ||||
Global health | 25 | 0.0 (0.0 to 25.0) | 5 | 0.0 (−15.0 to 27.5) |
Physical functioning | 25 | 0.0 (0.0 to 16.7) | 5 | −5.6 (−22.2 to 5.6) |
Role/social limitations – emotional/behavioural | 25 | 0.0 (0.0 to 0.0) | 5 | 0.0 (0.0 to 22.2) |
Role/social limitations – physical | 24 | 0.0 (0.0 to 12.5) | 5 | 16.7 (8.3 to 33.3) |
Bodily pain/discomfort | 24 | 0.0 (−10.0 to 20.0) | 5 | −20.0 (−25.0 to 5.0) |
Behaviour | 24 | 4.2 (−5.8 to 6.7) | 5 | 4.2 (2.1 to 11.3) |
Global behaviour item | 25 | 0.0 (−7.5 to 7.5) | 5 | 0.0 (0.0 to 20.0) |
Mental health | 25 | 0.0 (−7.5 to 10.0) | 5 | 5.0 (−2.5 to 15.0) |
Self-esteem | 25 | 0.0 (−12.5 to 8.3) | 5 | −8.3 (−14.6 to 16.7) |
General health perceptions | 24 | 8.3 (−5.4 to 16.7) | 5 | −12.5 (−17.1 to 0.4) |
Change in health | 25 | 0.0 (0.0 to 1.0) | 5 | 0.0 (0.0 to 1.5) |
Parental impact – emotional | 25 | 0.0 (−16.7 to 33.3) | 5 | 8.3 (0.0 to 12.5) |
Parental impact – time | 25 | 0.0 (−5.6 to 11.1) | 5 | 11.1 (−50.0 to 22.2) |
Family activities | 25 | 0.0 (−4.2 to 4.2) | 5 | 8.3 (−4.2 to 33.3) |
Family cohesion | 25 | 0.0 (0.0 to 0.0) | 5 | 25.0 (−27.5 to 50.0) |
Conners (parent questionnaire – raw scores) | ||||
Inattentive | 23 | 1.0 (−4.0 to 5.0) | 4 | −2.0 (−2.0 to 8.5) |
DSM inattentive | 23 | 1.0 (−3.0 to 3.0) | 4 | −1.0 (−2.5 to 5.0) |
Global index | 23 | 0.0 (−2.0 to 0.0) | 4 | −1.5 (−3.0 to 3.8) |
↵* The total number of participants for whom information was available at 1 year of follow-up. The ranges in brackets refer to median and interquartile ranges.
DSM, Diagnostic and Statistical Manual of Mental Disorders; FEV, forced expiratory volume; FVC, forced vital capacity; MEP, maximal expiratory pressure; MIP, maximal inspiratory pressure; NH, nocturnal hypoventilation; RV, residual volume; TLC, total lung capacity.