Table 3

 TACQOL scores of ARM patients and CDH patients aged 5–15 years compared with reference scores

DomainMean scores (SD)Difference with ref. group† (95% CI‡)
ARM (n = 118)CDH (n = 39)ARMCDH
The English version of the TACQOL is available on request.
†Reference scores (n = 1311) were derived from a random sample of Dutch children (aged 6–11) in the general population after exclusion of all children with any (parent reported) chronic condition.16 The means and standard deviations of six age and sex matched groups were combined.
‡95% confidence interval for the difference between the group means.
*Significant at p < 0.05.
**Significant at p < 0.01.
***Significant at p < 0.001.
Pain and symptoms27.5 (3.5)28.1 (2.9)−0.1 (−0.8 to 0.6)0.5 (−0.6 to 1.7)
Basic motor functioning30.0 (4.0)30.3 (3.0)−1.0 (−1.5 to −0.6)***−0.7 (−1.5 to 0.0)*
Autonomy30.6 (3.2)30.9 (2.5)−0.8 (−1.1 to −0.4)***−0.4 (−1.0 to 0.2)
Cognitive functioning29.0 (4.8)28.3 (4.2)−0.5 (−1.2 to 0.2)−1.2 (−2.4 to −0.1)*
Social functioning29.3 (3.7)29.9 (2.3)−0.7 (−1.2 to −0.3)**−0.1 (−0.8 to 0.6)
Global positive emotional functioning14.6 (2.3)14.8 (1.8)−0.4 (−0.7 to 0.0)*−0.2 (−0.8 to 0.4)
Global negative emotional functioning11.9 (2.5)12.4 (2.3)0.2 (−0.3 to 0.6)0.7 (0.0 to 1.5)