Table 2

Follow up interview with parents of children found to have CD

Questions34 parents of biopsy proven coeliacs4 parents that refused the intestinal biopsy
Thirty biopsy proven coeliacs and three children tested positive for IgA-AEA, anti-transglutaminase antibodies, and HLA DQ2 or HLA DQ8).
Is your child following the diet properly?
    Yes301
    No43
Main problems
    Practical and culinary61
    Social occasion212
    None70
Overall effect of the diet
    Positive130
    Negative20
    None192
Are you glad you allowed your child to be screened?
    Yes300
    I really regret it03
    I do not know41
Would you give your permission again?
    Yes341
    No03
Did you tell your first degree relatives about the screening programme?
    Yes153
    No191