Characteristics | Baseline | Follow up |
---|---|---|
Standard deviations, where applicable, are indicated in parentheses. | ||
*p<0.05; **significant at p<0.01 across two time periods using paired t tests. | ||
Parent–caregiving issues | ||
Lost more than a day in work last month because of caring for child’s condition (%) | 14.3 | 11.4 |
Perceives child’s condition is severe (%)** | 45.7 | 2.9 |
High use of services beyond medical treatment for child’s care (%)* | 14.3 | 2.9 |
Outcomes | ||
Total EASI score (physician rated)** | 30.8 (28.6) | 12.7 (14.8) |
Total SA-EASI score (parent rated)** | 18.2 (19.4) | 6.9 (5.7) |
AD Family Impact Scale score** | 10.0 (7.5) | 5.7 (4.1) |