Table 3

How the information was useful

No. of parents (%)
Further knowledge and understanding54 (77)
Reassurance 8 (11)
Support for family 7 (10)
Research updates 5 (7)
Information for school 3 (4)
Information on prognosis 3 (4)
Information aimed at child 1 (1)
Total81
(Total number of parents responding to question70)