No. of parents (%) | |
---|---|
*Information for schools (1), genetic or research updates (3), drug company information (1), general information (1). | |
More information on diagnosed condition | 89 (84) |
Medical treatments | 66 (62) |
Long term outcome | 60 (57) |
Alternative treatments | 41 (39) |
Possible diagnoses | 40 (38) |
Self help or patient support groups | 40 (38) |
Other families with a child with a similar problem | 28 (26) |
Other doctors or hospitals specialising in the condition | 22 (21) |
Other* | 6 (6) |
Total | 392 |
(Total number of parents responding to question | 106) |