Disease specific measures of quality of life identified
Measure | Report | Child age (y) | No. of domains | No. of items | Reliability | Validity | Origin | |||||||
Asthma | ||||||||||||||
About my Asthma32 | Self | 6–12 | — | 44 | Internal | Concurrent | USA | |||||||
Asthma Quality of Life33 | Self | Adolescent | 4 | 30 | Adult based | Australia | ||||||||
Childhood Asthma Questionnaires34 | Self | 4–7 | 1 | 14 | Internal | UK | ||||||||
8–11 | 2 | 22 | Test–retest | |||||||||||
12–16 | 3 | 31 | ||||||||||||
Pediatric Asthma Quality of Life Questionnaire35 | Self | 7–17 | 3 | 23 | Test–retest | Construct | Canada | |||||||
Cancer | ||||||||||||||
Behavioral Affective and Somatic Experiences Scale36 | Parent | 5–17 | 5 | 38 | Internal | Clinical | USA | |||||||
Self | 5–17 | 5 | 14 | Inter-rater | ||||||||||
Nurse | 5–17 | 5 | 38 | |||||||||||
The Miami Pediatric Quality of Life Questionnaire37 | Parent | 1–18 | 3 | 56 | Internal | Clinical | USA | |||||||
Test–retest | ||||||||||||||
The Pediatric Cancer Quality of Life Inventory38 | Parent | 8–18 | 5 | 32 | Internal | Construct | USA | |||||||
Self | 8–18 | 5 | 32 | Clinical | ||||||||||
The Pediatric Oncology Quality of Life Questionnaire39 | Parent | 0–18 | 3 | 21 | Internal | Concurrent | USA | |||||||
Inter-rater | Clinical | |||||||||||||
Play Performance Scale for Children40 41 | Parent | 0.5–16 | 1 | 1 | Inter-rater | Construct | USA | |||||||
Clinical | ||||||||||||||
Epilepsy | ||||||||||||||
Impact of Child Illness Scales42 | Parent | 6–17 | 5 | 30 | Face | UK | ||||||||
Quality of Life in Epilepsy-3143 | Parent/self | Not clear | 7 | 31 | Adult measure | Canada | ||||||||
Quality of Life in Epilepsy (adapted from QOLIE-89)44 | Self | 8–18 | 5 | 25 | Adult measure | USA | ||||||||
Quality of Life in Epilepsy—AD-4845 | Self | 11–17 | 7 | 48 | Internal | Construct | USA | |||||||
Test–retest | ||||||||||||||
Other | ||||||||||||||
Children's Dermatology Life Quality Index46 | Self | 3–16 | 6 | 10 | Test–retest | UK | ||||||||
Diabetes Quality of Life47 | Self | 11–18 | 3 | 52 | Internal | USA | ||||||||
Test–retest | ||||||||||||||
Juvenile Arthritis Quality of Life Questionnaire48 | Parent | 2–18 | 4 | 74 | Construct | Canada | ||||||||
Self | 9–18 | 4 | 74 | Clinical | ||||||||||
Life Satisfaction Index for Adolescents (with neuromuscular disorders)49 | Self | 12–18 | 5 | 35 | Internal | Construct | Canada | |||||||
Pediatric Rhinoconjunctivitis Quality of Life50 | Self | 6–12 | 5 | 23 | Internal | Concurrent | Canada | |||||||
Self | 12–17 | 6 | 25 | Test–retest | ||||||||||
Quality of Life in Children with Crohn's Disease51 | Self | 8–17 | 6 | 88 | Concurrent | USA | ||||||||
Quality of Life Headache in Youth52 | Parent | 12–18 | 14 | 71 | Internal | Clinical | Norway | |||||||
Self | 12–18 | 14 | 71 | Test–retest | ||||||||||
Quality of Life for Children with Otitis Media53 | Parent | 0.5–12 | 6 | 6 | Internal | Construct | USA | |||||||
Test–retest | Sensitivity | |||||||||||||
Quality of Life and Short Stature54 | Self | 8–18 | 5 | 45 | Israel | |||||||||
Quality of Life in Spina Bifida Questionnaire55 | Parent | 5–12 | 10 | 44 | Internal | Construct | Canada | |||||||
Self | 13–20 | 10 | 47 | Test–retest | ||||||||||
Quality of Life Profile for Spine Deformities56 | Self | 10–20 | 5 | 21 | Test–retest | Spain | ||||||||
Internal |