Table 3

Sensitivity3-150 of case ascertainment through the APSU

Condition under surveillanceCases from other sources not ascertained by the APSUAPSU casesTotal casesSensitivity
(95% CI)
Rett Syndrome Association of Australia3-151 and other sourcesVictorian birth defects registerCommunicable Disease IntelligenceAustralian Hearing ServicesNSW inpatient data July 1993–June 1994Mandatory notification NSW Dec 1996–May 1997
Rett syndrome3-152 499314264% (57 to 73)
Congenital rubella001121392 % (64 to 100)
Drowning/near drowning3-153 62289031% (22 to 42)
Extrahepatic biliary atresia191090% (56 to 100)
Haemolytic uraemic syndrome14580% (28 to 99)
  • 3-150 Sensitivity is the total number of cases detected by APSU divided by the total number of cases detected by APSU and independent sources of ascertainment.

  • 3-151 Rett Syndrome Association of Australia is a support group for parents and carers of girls and women with Rett syndrome.

  • 3-152 This study aimed to determine prevalent cases of Rett syndrome and it was anticipated that a proportion of cases would not be seen by the mailing list.

  • 3-153 The primary aim of the study was to determine the incidence of near drowning. It was anticipated from the outset that the APSU would not detect all drowning deaths and that these cases would be obtained through the coroner.