Condition under surveillance | Cases from other sources not ascertained by the APSU | APSU cases | Total cases | Sensitivity (95% CI) | |||||
---|---|---|---|---|---|---|---|---|---|
Rett Syndrome Association of Australia3-151 and other sources | Victorian birth defects register | Communicable Disease Intelligence | Australian Hearing Services | NSW inpatient data July 1993–June 1994 | Mandatory notification NSW Dec 1996–May 1997 | ||||
Rett syndrome3-152 | 49 | 93 | 142 | 64% (57 to 73) | |||||
Congenital rubella | 0 | 0 | 1 | 12 | 13 | 92 % (64 to 100) | |||
Drowning/near drowning3-153 | 62 | 28 | 90 | 31% (22 to 42) | |||||
Extrahepatic biliary atresia | 1 | 9 | 10 | 90% (56 to 100) | |||||
Haemolytic uraemic syndrome | 1 | 4 | 5 | 80% (28 to 99) |
↵3-150 Sensitivity is the total number of cases detected by APSU divided by the total number of cases detected by APSU and independent sources of ascertainment.
↵3-151 Rett Syndrome Association of Australia is a support group for parents and carers of girls and women with Rett syndrome.
↵3-152 This study aimed to determine prevalent cases of Rett syndrome and it was anticipated that a proportion of cases would not be seen by the mailing list.
↵3-153 The primary aim of the study was to determine the incidence of near drowning. It was anticipated from the outset that the APSU would not detect all drowning deaths and that these cases would be obtained through the coroner.