Appendix Epilepsy patient and family questionnaire Please answer on scale of 1–5: 1, not at all; 2, barely; 3, somewhat; 4, mostly; 5, very much
| Courtesy | Please circle | |||||
|---|---|---|---|---|---|---|
| a | Do you find reception staff friendly & polite? | 1 | 2 | 3 | 4 | 5 |
| b | Do you find nursing staff friendly & polite? | 1 | 2 | 3 | 4 | 5 |
| c | Do you find medical staff friendly & polite? | 1 | 2 | 3 | 4 | 5 |
| Communication | ||||||
| a | Was your child’s epilepsy explained to you? | 1 | 2 | 3 | 4 | 5 |
| b | Do you feel you have enough information to understand your child’s epilepsy? | 1 | 2 | 3 | 4 | 5 |
| c | Do you find the doctors easy to talk to? | 1 | 2 | 3 | 4 | 5 |
| d | Do you feel that your questions are listened to? | 1 | 2 | 3 | 4 | 5 |
| e | Do you feel your questions are adequately answered? | 1 | 2 | 3 | 4 | 5 |
| Clinic visits | ||||||
| a | Is the waiting time before seeing the doctor acceptable? | 1 | 2 | 3 | 4 | 5 |
| b | Are your clinic visits | |||||
| too frequent = 1, too seldom = 2, just right = 3 | 1 | 2 | 3 | |||
| c | Is the time spent with the doctor generally | |||||
| too long = 1, too short = 2, just right = 3 | 1 | 2 | 3 | |||
| d | Do you feel clinic visits are worthwhile? | 1 | 2 | 3 | 4 | 5 |
| e | Are you happy with your child’s care? | 1 | 2 | 3 | 4 | 5 |