TY - JOUR T1 - Ethiopian paediatric oncology registry progress report: documentation practice improvements at tertiary care centre in Addis Ababa, Ethiopia JF - Archives of Disease in Childhood JO - Arch Dis Child SP - 1244 LP - 1245 DO - 10.1136/archdischild-2021-322485 VL - 106 IS - 12 AU - Scott Levy AU - Atalay Mulu Fentie AU - Kaitlyn Buhlinger AU - Stephen M Clark AU - David N Korones AU - Vanessa Miller AU - Thomas B Alexander AU - Sheila Weitzman AU - Wondwessen Bekele AU - Julie Broas AU - Aziza Shad AU - Megan Roberts AU - Michael Chargualaf AU - Diriba Fufa AU - Tadele Hailu AU - Mulugeta Ayalew Yimer AU - Mohammed Mustefa AU - Abdulkadir M Said Gidey AU - Ali Mamude Dinkiye AU - Haileyesus Adam AU - Daniel Hailu AU - Benyam Muluneh Y1 - 2021/12/01 UR - http://adc.bmj.com/content/106/12/1244.abstract N2 - Limited data are available regarding cancer in low and middle-income countries (LMICs), distorting the true burden of paediatric cancer.1 A sobering statistic based on available data shows that more than 80% of children diagnosed with cancer in high-income countries survive, while fewer than 25% of children in LMICs survive.2 While access to paediatric oncological care in Ethiopia is improving, the establishment of a national paediatric cancer registry remains an unmet need. Building on our previous work, we sought to standardise patient treatment documentation within the paediatric haematology and oncology department at Tikur Anbessa Specialized Hospital (TASH) in Addis Ababa, Ethiopia, to begin formal paediatric cancer registration at TASH.3 We interviewed medical record users and observed that there was a lack of consistency in treatment documentation as well as variability in the collection of data relating to cancer diagnoses. We attempted to address these gaps in documentation through the creation of two separate sets of data … ER -