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Letter
Cystic fibrosis transition from paediatric to adult care: international survey results
  1. Daniel Office,
  2. Susan Madge
  1. Adult Cystic Fibrosis Centre, Royal Brompton Hospital, London, UK
  1. Correspondence to Daniel Office; d.office{at}rbht.nhs.uk

https://doi.org/10.1136/archdischild-2023-326447

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    Transition is the planned and purposeful movement of patients from paediatric to adult care.1 Over the last five decades there have been many advances in cystic fibrosis (CF) treatment. Deaths within the paediatric population are now rare with only six reported in the UK in 2021 (total population n=10 908).2 Therefore, the majority of those affected are expected to transition to adult care, thus there is a need for CF teams to have robust transition processes.

    A survey was disseminated to CF teams at international CF conferences over an 18-month period. To establish a consensus, we sought information regarding key aspects of transition. Participants included nurses, physiotherapists, dietitians, psychologists, social workers and doctors specialising in paediatric/adult CF. There were multiple answers to each question. Responses n=34/40, representing multidisciplinary teams (MDT) from 16 countries (Northern, Eastern …

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    Footnotes

    • Contributors DO participated in the study concept and design; contributed to acquisition, analysis and interpretation of data and drafting and reviewing the manuscript; and approved the final version. DO in the guarantor for this work. SM participated in the study concept and design; contributed to acquisition, analysis and interpretation of data and drafting and reviewing the manuscript; and approved the final version.

    • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

    • Competing interests None declared.

    • Provenance and peer review Not commissioned; externally peer reviewed.