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Barriers and facilitators to continuity and co-ordination of healthcare for under 18 years old: a systematic review

Abstract

Objective To determine views and experiences of babies, children and young people relating to continuity of their healthcare.

Design Qualitative systematic review.

Setting Primary research from UK settings where NHS-commissioned or local authority-commissioned healthcare is provided. Systematic reviews from UK and non-UK high-income countries.

Population Babies, children and young people under 18 years old with experience of healthcare. Parental and/or carer perspectives only included if children are under 5 years old or unable to express their own view.

Interventions Not applicable.

Main outcome measures Thematic analysis of the benefits and facilitators to continuity of care for babies, children and young people.

Results 20 047 abstracts were screened; 186 full-text articles were reviewed; 11 papers fulfilled the review criteria. From these, four main themes and 14 subthemes were identified. The theme ‘individuals’ had four subthemes: ‘knowledge of healthcare system’, ‘support’, ‘personal lives’ and ‘results’. The theme ‘healthcare professionals’ had four subthemes: ‘interservice communication’, ‘collaboration with babies, children and young people’, ‘communications’ and ‘relationships with healthcare professionals’. The theme ‘practical’ had four subthemes: ‘colocation’, ‘appointment times’, ‘referrals’ and ‘waiting times’. The theme ‘technological’ had two subthemes: ‘ease of use’ and ‘complements current healthcare management’.

Conclusions Continuity of healthcare for babies, children and young people can enhance clinical outcomes but requires active facilitation by healthcare providers and services, especially in circumstances where individuals or their families are less able to advocate for themselves. A range of barriers and facilitators were identified together with recommendations for enhancing continuity of care.

PROSPERO registration number CRD42019145566.

  • Child Health
  • Adolescent Health

Data availability statement

All data relevant to the study are included in the article or uploaded as supplementary information. Not applicable.

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