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Termed status dystonicus when most severe,1 dystonia is a disorder in which muscle contractions generate abnormal movements and/or postures.2 While it is recognised that severe dystonia may require intensive care management,1 there is a paucity of data addressing the prevalence of dystonia in paediatric intensive care units (PICUs). We therefore aimed to determine the incidence of dystonia as a contributor to the need for admission to PICU and/or as a factor complicating PICU admission at a single centre. To this effect, we performed a 10-year retrospective review of admissions to Evelina London Children’s Hospital (ELCH) PICU as well as interrogating the Paediatric Intensive Care Audit Network (PICANet) database3 for all UK centres to identify admissions caused by dystonia (see online supplementary material).
There were 12 103 admissions to the ELCH PICU between September 2007 and September 2017, including 583 from patients with ICD-9 codes suggesting a diagnosis which may give rise to dystonia. Case note review confirmed dystonia in 369/583 (63%) admissions. The 369 admissions were experienced …
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