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We would like to commend the timely review by Dr Odgers and colleagues,1 highlighting the lack of child/caregiver involvement and the need for greater clarity in methodology in studies, eliciting stakeholder priorities for paediatric chronic disease research. As the period of study ended in October 2016, we would like to provide an update on our own work in this area published since this date and briefly mentioned in the discussion.2 3 We involved a relatively large number of young people (n=63, age range 10–24 years, 43 females, 20 males) with a range of chronic rheumatic musculoskeletal disease across all four nations of the UK …
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