Article Text

other Versions

PDF
Letter
Management of dystonia in paediatric palliative care
  1. Thomas Slater1,
  2. Gillian Hughes2,
  3. Daniel E Lumsden1,
  4. Joanna Laddie2
  1. 1Department of Paediatric Neurosciences, Evelina London Children’s Hospital, London, UK
  2. 2Department of Paediatric Palliative Care, Evelina London Children’s Hospital, London, UK
  1. Correspondence to Dr Thomas Slater, Department of Paediatric Neurosciences, Evelina London Children’s Hospital, Guy’s & St. Thomas' NHS Foundation Trust, London SE1 7EH, UK; tslater{at}doctors.org.uk

Statistics from Altmetric.com

Dystonia is a challenging neurological symptom found in paediatric palliative care (PPC).1 While well defined as a movement disorder characterised by sustained or intermittent muscle contractions associated with abnormal movement and posturing, dystonia is less well recognised and identified by clinicians.2 A wide range of therapies exist but consensus is often lacking regarding choice of treatment. No studies to date have analysed differences in management of dystonia between palliative care and neurology services.

We performed a survey of practice of the PPC database at Evelina London Children’s Hospital, a non-malignant caseload covering southeast England. Specifically with regard to dystonia, documentation over 12 months (preceding July 2017) was retrospectively reviewed to assess …

View Full Text

Request Permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.