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Dystonia is a challenging neurological symptom found in paediatric palliative care (PPC).1 While well defined as a movement disorder characterised by sustained or intermittent muscle contractions associated with abnormal movement and posturing, dystonia is less well recognised and identified by clinicians.2 A wide range of therapies exist but consensus is often lacking regarding choice of treatment. No studies to date have analysed differences in management of dystonia between palliative care and neurology services.
We performed a survey of practice of the PPC database at Evelina London Children’s Hospital, a non-malignant caseload covering southeast England. Specifically with regard to dystonia, documentation over 12 months (preceding July 2017) was retrospectively reviewed to assess …
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