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G177. PAEDIATRIC PALLIATIVE CARE—WHERE AND WHAT IS PUBLISHED?
A. Hunt1,2, R. Hain3, S. Jassal4, A. Thompson5.
1 Royal College of Nursing Institute, Radcliffe Infirmary, Oxford; 2 Department of Child Health, University of Wales College of Medicine, Llandough Hospital, Cardiff; 4 Rainbows Hospice for Children, Loughborough; 5 Child Health Services, North Warwickshire PCT, Nuneaton
PaedPalLit is a web-based abstracting journal hosted by the Association for Children with Life-threatening or Terminal Illness and their families (ACT). This initiative seeks to make literature relevant to Paediatric Palliative Care (PPC) more readily available to clinicians.
Aims of study: To identify the range and spread of papers relevant to PPC published in 2000/ 2001.
Methods: Papers, previously identified by PaedPalLit, were analysed by journal, type of paper and subject area.
Results: Forty-six papers published in 2000 and 54 in 2001 were identified. Papers were published in 53 journals. The largest number were published in paediatric medicine (40 papers published in 15 journals), general / adult medicine (16 papers in 7 journals); paediatric nursing (5 papers in 5 journals); adult / general nursing (11 papers in 9 journals); palliative care (14 papers in 8 journals); psycho-social (8 papers in 7 journals) and ethics journals (2 papers in 2 journals). Forty-one papers were reports of primary research and 7 were secondary, the remaining 52 being advisory, descriptive or discussion papers. Research methods most commonly used were survey (10), qualitative (6), epidemiological (5) and longitudinal studies (4). Only one (non-randomized) clinical trial was reported. Children with cancer were the focus of 22 papers, whilst 25 were more generally related to palliative care issues in the paediatric population. In 13 papers, ethical decision making was the focus, in particular withdrawal of treatment in critical care, neonatal and oncology settings.
Conclusions: Papers relevant to PPC are widely and thinly distributed. …