Introduction The announcement of a disability in a child or infant is too delicate because it is crucial for the future of the child and his family.
Materials and methods We conducted a descriptive and analytical study about parents of 83 children with disabilities, followed in the neonatal unit of Sfax and supported in one of the associations for the disabled.
Semi-structured interviews were conducted by a psychiatrist or psychologist to complete a questionnaire.
Results The paediatrician was the first preacher of disability in 48% of cases. This announcement took place at the outpatient in 78% of cases during the 40th day consultation in more than two thirds of cases. The mother was lonely during the announcement in 53% of cases. Talks criminalising the parents in the aetiology of disability were present in one third of cases and those downplaying the role of parents in the care were noted in a quarter of cases.
The immediate experience of the parents was dominated by anxiety in 62.5% of cases and depressive symptoms in third of cases.
Contributing factors to these situations were:
- The male child
- Talks criminalising parents in the aetiology of disability
- trivialising attitude
- A long conversation
- An announcement in consultation
Conclusion The announcement of disability requires much more interest in our region. Our purpose is to translate a message of hope in steed of drama.
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