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Engaging children and parents in service design and delivery
  1. A R Bedford Russell1,
  2. M Passant2,
  3. H Kitt3
  1. 1Neonatal Intensive Care Unit (NICU), Birmingham Women's NICU, Birmingham, UK
  2. 2West Midlands Strategic Clinical Networks, NHS England, UK
  3. 3Queens University Medical School Belfast, Belfast, UK
  1. Correspondence to Dr A R Bedford Russell, Birmingham Women's NICU, Mindelsohn Way, Birmingham B15 2TG, UK; Alison.bedfordrussell{at}


The involvement of all user groups, including children, young people (CYP) and their parents, encourages people to take responsibility for healthier lifestyle behaviours, improves treatment compliance and leads to more appropriate use of healthcare resources. Initiatives to engage CYP in the UK are gathering momentum, but significant improvements are still needed. There is a national drive from the department of health (DH) and NHS England, strategic clinical networks, operational delivery networks (including newborn networks), charities, parent groups and a number of other bodies to embed CYP involvement in service design and delivery. User engagement and patient choice, is underpinned by the NHS outcomes framework, and a myriad of other DH and NHS England policies and practice frameworks. It is now everybody's business.

  • Patient perspective
  • Health Service
  • Children's Rights
  • General Paediatrics
  • Health Economics

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