Method This observational survey was prospectively conducted between Jan 2010 and April 2011. Precipitants (parents or other primary care givers) of infants on home oxygen were identified through the Neonatal Outreach Referral Records. A questionnaire of 22 items was sent out to all eligible participants.

Results 18 parents/carers participated in the survey. The feedback showed that having home oxygen affected their family and social life. Support was given by health care professional regarding use of the home oxygen and safety advice in emergencies, however some of the issues identified were out of the control of the health professionals.

Conclusions Awareness of the psychological impact of discharging infants on home oxygen to the parents should be important to all health professionals involved. A standard training for the Neonatal outreach nurses and Children home Care Team should be considered in asssessment of mild depression or identifying triggers of stress prior to discharge and within the community.