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Editorial
Ethics bureaucracy: a significant hurdle for collaborative follow-up of drug effectiveness in rare childhood diseases

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Footnotes

  • Funding The Swedish Medical Products Agency, The IMI project BT-CURE (Grant agreement No. 115142-1) and the Biobanking and Molecular Resource Infrastructure of Sweden (BBMRI.se).

  • Competing interests None.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data sharing statement Data of this study are open for access.