There has been a major focus on research within the NHS in recent years and many health professionals are now familiar with recruiting patients into clinical trials. The Good Clinical Practiceframework has helped to ensure that this is undertaken in an appropriate manner with careful consideration of the patients' rights.

We are involved in an international multicentre study that has a double-blind design. The study involves taking trial drug or placebo for several years and hence represents a significant undertaking for the young person and their family. …