The importance of rare diseases: from the gene to society
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    Epidemiological surveillance of rare diseases.

    Sir, We welcome the recent elucidation of the significance of rare diseases in children provided by the Archives of Disease in Childhood (Arch Dis Child 2011;96:791-792), and the increased recognition they are receiving by the European Union, and in England by the Chief Medical Officer (CMO report 2009). A key component of increasing recognition will be the provision of epidemiological surveillance of rare diseases....

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    Conflict of Interest:
    None declared.